Thursday, May 24, 2007

Prayers & Good Wishes Needed

Over a year ago I wrote a message here about my my sister's grand baby needing prayers and good wishes. Well, he needs them again. He's in the hospital once more, this time on life support. Back then they didn't give him much hope of seeing his first birthday. Well, he made it. Now we are hoping for a second one. He was born with something called Autosomal Recessive Cutis Laxa Type One. There are only a couple of hundred people or less in the whole world with Cutis Laxa, and his is the very worse kind. It is a rare genetic disorder of the connective tissue. On the outside it shows up in loose and hanging skin, but it does worse stuff inside. He has had one battle after another, and has seemed to be doing so well lately. He just started walking and seemed to be so happy, and now this. I'm hoping there's some way for him to have more time, if it can be good time. More time for him to laugh, to play with his big sister and his grandma's dogs, to enjoy the new freedom he's found since he has a special daycare where he can spend a few hours at a time with other children. So, if you have a moment, please say a prayer, a blessing, send good thoughts, white light, what ever you can, that he'll beat the odds and be laughing for one more birthday.

2 comments:

~Em~ said...

I'm sorry to hear about that. He's been prayed for on my end. :)

Charlotte Dillon said...

He's coming home this weekend!